http://womenandfibromyalgia.com Living with an Invisible Dis-ease Thu, 11 Mar 2010 14:33:49 +0000 http://wordpress.org/?v=2.8.4 en hourly 1 http://womenandfibromyalgia.com/2010/02/20/fibromyalgia-and-science/ http://womenandfibromyalgia.com/2010/02/20/fibromyalgia-and-science/#comments Sat, 20 Feb 2010 17:25:16 +0000 Barbara Keddy http://womenandfibromyalgia.com/?p=735 “Nothing in life is to be feared. It is only to be understood”, Marie Curie I recently heard a presentation from a distinguished scientist speaking about fibromyalgia. The audience seemed to be mostly comprised of people with fibromyalgia. He referred to fibromyalgia as a ‘terrible disease’. My immediate reaction was not very positive as I don’t [...]]]> http://womenandfibromyalgia.com/2010/02/20/fibromyalgia-and-science/feed/ 10 http://womenandfibromyalgia.com/2010/02/07/autismadhddyslexia-and-brain-wiring-fibromyalgia-and-brain-wiring/ http://womenandfibromyalgia.com/2010/02/07/autismadhddyslexia-and-brain-wiring-fibromyalgia-and-brain-wiring/#comments Sun, 07 Feb 2010 17:34:12 +0000 Barbara Keddy http://womenandfibromyalgia.com/?p=728 “One of the problems in understanding sensory issues is that sensory sensitivities are very variable, among individuals and within the same individual”, Temple Grandin I have recently heard interviews on NPR with Dr.Temple Grandin, one of the leading experts in autism. Unfortunately I don’t have HBO so did not watch the movie of her life on [...]]]> http://womenandfibromyalgia.com/2010/02/07/autismadhddyslexia-and-brain-wiring-fibromyalgia-and-brain-wiring/feed/ 4 http://womenandfibromyalgia.com/2010/01/31/fibromyalgia-and-singing/ http://womenandfibromyalgia.com/2010/01/31/fibromyalgia-and-singing/#comments Sun, 31 Jan 2010 16:06:18 +0000 Barbara Keddy http://womenandfibromyalgia.com/?p=715 ” The only thing better than singing is more singing”, Ella Fitzgerald The singer/songwriter Shelly Quarmby has just released  a six song EP entitled Change; the proceeds of one of the tracks will be donated to the  Fibromyalgia Association of the United Kingdom (FMA UK). Her own struggles with fibromyalgia inspired her to make this contribution. Shelly [...]]]> http://womenandfibromyalgia.com/2010/01/31/fibromyalgia-and-singing/feed/ 6 http://womenandfibromyalgia.com/2010/01/28/howard-zinn/ http://womenandfibromyalgia.com/2010/01/28/howard-zinn/#comments Thu, 28 Jan 2010 16:27:08 +0000 Barbara Keddy http://womenandfibromyalgia.com/?p=704 “To be hopeful in bad times is not just foolishly romantic. It is based on the fact that human history is a history not only of cruelty, but also of compassion, sacrifice, courage, kindness…”, Howard Zinn The death of Howard Zinn yesterday is a sad loss. He has had a profound impact upon me. I had [...]]]> http://womenandfibromyalgia.com/2010/01/28/howard-zinn/feed/ 1 http://womenandfibromyalgia.com/2010/01/16/finding-passion-while-living-with-fibromyalgia/ http://womenandfibromyalgia.com/2010/01/16/finding-passion-while-living-with-fibromyalgia/#comments Sat, 16 Jan 2010 23:50:22 +0000 Barbara Keddy http://womenandfibromyalgia.com/?p=688 ” It always seems impossible until it’s done”, Nelson Mandela I have recently heard Sirena Dufault  give a presentation of her 800 mile hike from Utah to the US -Mexico border. The two years she spent hiking the Arizona trails were intended to raise awareness about fibromyalgia. Hiking has become her passion. You can see her [...]]]> http://womenandfibromyalgia.com/2010/01/16/finding-passion-while-living-with-fibromyalgia/feed/ 2 http://womenandfibromyalgia.com/2010/01/08/fibromyalgia-and-hearing-loss/ http://womenandfibromyalgia.com/2010/01/08/fibromyalgia-and-hearing-loss/#comments Fri, 08 Jan 2010 18:26:24 +0000 Barbara Keddy http://womenandfibromyalgia.com/?p=665 “Limitations only go so far”, Robert M.Hensel Hearing loss appears to be common after a prolonged history of fibromyalgia. It seems as though sensorineural hearing loss, that is, loss that is due to damage to the inner ear auditory nerve pathways to the brain, occurs more frequently in fibromyalgia than has been reported. It stands to [...]]]> http://womenandfibromyalgia.com/2010/01/08/fibromyalgia-and-hearing-loss/feed/ 2 http://womenandfibromyalgia.com/2009/12/30/fibromyalgia-and-aging-hope-for-the-new-decade/ http://womenandfibromyalgia.com/2009/12/30/fibromyalgia-and-aging-hope-for-the-new-decade/#comments Thu, 31 Dec 2009 02:51:03 +0000 Barbara Keddy http://womenandfibromyalgia.com/?p=652 ” To be seventy years young is sometimes far more cheerful and hopeful than to be forty years old”, Oliver Wendell Holmes As we age each new year brings hope of change in a positive direction. Less pain, less fatigue, better quality sleep are the things I wish for. The new resolutions: try not to overdo [...]]]> http://womenandfibromyalgia.com/2009/12/30/fibromyalgia-and-aging-hope-for-the-new-decade/feed/ 6 http://womenandfibromyalgia.com/2009/12/26/male-caregiving-for-the-spouse-with-fibromyalgia/ http://womenandfibromyalgia.com/2009/12/26/male-caregiving-for-the-spouse-with-fibromyalgia/#comments Sat, 26 Dec 2009 13:15:50 +0000 Barbara Keddy http://womenandfibromyalgia.com/?p=631 “Caring is pivotal to keeping the human enterprise going, yet its function is invisible in the organization of our daily lives”, Sheila Neysmith This is my 50th blog and I have never yet discussed male caregivers! In my book I discussed with the women living with fibromyalgia the issues regarding the people who supported them (or in many cases, [...]]]> http://womenandfibromyalgia.com/2009/12/26/male-caregiving-for-the-spouse-with-fibromyalgia/feed/ 6 http://womenandfibromyalgia.com/2009/12/14/a-new-album-for-those-of-us-with-fibromyalgia/ http://womenandfibromyalgia.com/2009/12/14/a-new-album-for-those-of-us-with-fibromyalgia/#comments Mon, 14 Dec 2009 20:03:17 +0000 Barbara Keddy http://womenandfibromyalgia.com/?p=612 “Music expresses that which cannot be said and on which it is impossible to be silent”, Victor Hugo Tamara Cimmerian has just released a new album about  overcoming adversity and living with fibromyalgia. This will be a great way to raise awareness about our condition. It is a KatZens production called Overcome. Tamara will be writing [...]]]> http://womenandfibromyalgia.com/2009/12/14/a-new-album-for-those-of-us-with-fibromyalgia/feed/ 6 http://womenandfibromyalgia.com/2009/12/06/fibromyalgiachristmashannukkahbodhi-dayal-hijirayulekwanzaa-and-womens-work/ http://womenandfibromyalgia.com/2009/12/06/fibromyalgiachristmashannukkahbodhi-dayal-hijirayulekwanzaa-and-womens-work/#comments Sun, 06 Dec 2009 16:02:02 +0000 Barbara Keddy http://womenandfibromyalgia.com/?p=578 ” You must learn to be still in the midst of activity and to be vibrantly alive in repose” , Indira Gandhi Here we are once again in the season of  religious holidays for many  during this hectic month. Even if a person does not believe in or celebrate any of the holidays, it is impossible [...]]]> http://womenandfibromyalgia.com/2009/12/06/fibromyalgiachristmashannukkahbodhi-dayal-hijirayulekwanzaa-and-womens-work/feed/ 0