Fibromyalgia is NOT a ‘Disease’! Manual therapists to “help”?

“Names are not always what they seem”, Mark Twain

How to go about convincing experts and the general population that fibromyalgia is not a disease, but a Medically Unexplained Syndrome (MUS)? It is in fact, a dis-ease. It is mysterious in the ways in which it exhibits itself with a vast array of features, but the cause can be explained as an uneasy central nervous system! What is implied in that name? Generally it is ‘sore all over’. Fibromyalgia is a compilation of various symptoms such as pain, fatigue, itching, depression, digestive upsets and such a variety of psycho-social- biological challenges that are almost too numerous to cite. The onset :  occurs in a highly sensitive, anxious person, with a chronically hyper-aroused nervous system, the fearful amygdala of the brain in hyper-vigilant mode, and generally, but not exclusively, is brought on after a traumatic event, such as an accident or surgery, divorce or the death of a loved one and especially such traumatic events as wars.. Its twin is PTSD. Over time muscles and subsequently joints become increasingly painful and the quality of life suffers.

Is there a type of person more prone to fibro? Well, an anxious personality is a predisposing factor. Whether or not it is a personality trait that one is born with or acquired is up for debate. The person is a ‘type’, but not all anxious persons have fibromyalgia, however the opposite is true, that is, those with fibromyalgia have a history of anxiety. The mind and the body cannot be separated and are together joined forever. It is not a ‘curable’ dis-ease, but there is life after the diagnosis. So let us lighten up a bit for a few seconds! Bright flamingos should bring a smile to our faces, even if it is temporary ( I took this picture in Paris two years ago. These flamingoes did not have fibromyalgia). The more we smile the more the nervous system tells the brain there isn’t any danger, so relax and breathe. FIBROMYALGIA IS NOT LIFE THREATENING. But, it IS challenging! What is to be done for relief?

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Fibromyalgia and the Healing Touch

“Touch seems to be as essential as sunlight”, Diane Ackerman massage-002

People who suffer from chronic pain have generally found that physical touch is a valuable source of relief which can alleviate (or at least reduce) pain and enhance well being. Those of us who have fibromyalgia and are able to afford any of the various techniques of body work such as remedial massage, and jin shin jyutsu have found short term release of pain. Some even think that therapeutic touch is helpful, and although I fail to see how not directly touching the body can be helpful, many do find just that! I suspect it is from a placebo effect. I am not an advocate of that technique as I do not believe that ‘energy’ is moved around as those practicing TT do advocate. Instead I believe that direct touch can help with releasing tight muscles and bring about relaxation of the nervous system. I have usually benefited from the effects of these therapies.

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