MY ‘NEW’ BOOK ON FIBROMYALGIA!

I haven’t been writing more blogs of late as I am working on publishing a book from most of my previous blogs. Included in this book will be numerous comments from my readers which have been invigorating to re-read.. Reviewing the blogs, editing (phew! how did I allow so many¬† mistakes to get past me? I was often careless in my writing!) and making decisions as to which ones to include has been an interesting, complex process..

As I re-read these old blogs I am struck by how much they revealed about my state of mind at the time of writing and the physical¬† and emotional struggles I was experiencing at various stages of the last decade. Burdened with care-giving of my aging parents and their death, my own heart attack, a hip replacement, difficulties with mobility, aging have been the key obstacles to a better quality of life for myself. However, self reflection, has been the reward for all these challenges. I understand fibromyalgia now, more completely than ever. The greatest gift has been the support I received from my readers. I’m not going to include my responses to each person who contributed comments, but the stories they have to tell and the support and advice they have given has resulted in a very enriching ‘new’ book.

I have learned to pace myself (somewhat) so I can’t promise when this book will be completed but do stay tuned.

I want to thank you, my dear readers, for the wonderful comments you have submitted over the years. Since you were so kind as to include your full names I can only assume you were willing to, and in some cases eager to, cite your full names on your comments. In the book I will eliminate your last names, except in a few cases when it is appropriate to leave them in. I do so to protect your anonymity even though they are in the public domain on the blogs. If you have submitted a comment over the years and want to have it deleted from the blogs of the past you can always let me know.

5 comments

  1. Ursula says:

    Dear Barbara,

    I am delighted to read you decided to write another book on Fibromyalgia.

    I myself still have to read your first book and did purchase it about 6 months ago,… but due to personal problems there wasn’t much ‘brain time’ to read and comprehend… So I am keeping it safe for a little while longer.

    I had to smile while reading about your self reflection.

    Not because I didn’t take it serious, but because you described the process so very well with your wonderful way by combining seriousness and honesty with a lightness and underlying humour…. all of which attracted me to your blog in the first place.

    It’s a process we all go through if we allow ourselves the time to re-read what we wrote over a period of time.

    A lot of times the words we wrote are secondary but the meaning of the writing becomes much clearer. We are able to have taken a step back and become observers of our emotions rather than participants. I have started to appreciate that view myself over the years and find, depending on the mood I am in during the time of re-reading, my view of myself changes according.

    I wish you all the best for writing your new book and am hoping besides the hard work, you will enjoy every step of it.

    I am looking forward to it.

  2. Barbara Keddy
    Barbara Keddy says:

    Lois: Reviewing all the comments of many years I feel as though I know you very well! Love how devoted you have been to commenting and becoming friends with me.
    Regards,
    Barbara

  3. Jennifer says:

    Dear Barbara, I’m looking forward to your new book without having even discovered that there was an ‘old’ book until yesterday! My sister and I are 62 and 47 respectively and have shared the same pattern of health issues over the course of our lives. So it was when I typed Hearing Loss and Fibromyalgia in to a search engine yesterday that I was lead to you.
    My sister, C, and I both have Sensorineural Bi-lateral hearing loss which started in our late teens, with no logical explanation. Later, when we hit our late thirties/early forties, we began to deal with the chronic pain issues that would later be diagnosed as Fibromyalgia. But of course, as you know, the journey to such a ‘diagnosis’ is never that simple. First you have to be treated for depression/anxiety because that HAS to be the explanation for all of the complaining we do about how we hurt all of the time. And you also think about the trauma that you have gone through (because the internet says that trauma can bring on Fibro)…so maybe it was the cancer, or the hysterectomy, or the divorce or…well, who knows.
    C and I have both had genetic testing for our hearing loss and seen Rheumatologists for our Fibro (she also deals with the auto-immune disease Vitiligo. Really, where does one physical issue end and another begin? Why is it that we are both so similarly ‘defective’?
    We’ve always joked that every genetic defect has to start somewhere…of course this would start with us! And that’s what gets us through most days…our sense of humour. Because it’s disheartening and painful and sometimes embarrassing to have to explain yourself over and over again.
    So thank you, Barbara, for investing your life in to this research…for all of us.

  4. Barbara Keddy
    Barbara Keddy says:

    Dear Jennifer:
    Welcome to the site and all 125+ blogs. Happy reading. A sense of humour is indeed welcome as much of what is written here is rather gloomy. I am glad to meet you!You will find after reading the blogs and hundreds of comments that some kind of trauma usually brings on the chronic fibromyalgia whereas we actually began the process in early childhood.
    I hope you enjoy the blogs and eventually the ‘new’ book.
    Regards,
    Barbara

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