Comments on: Fibromyalgia and Florence Nightingale http://womenandfibromyalgia.com/2008/05/12/fibromyalgia-and-florence-nightingale/ Living with an Invisible Dis-ease Wed, 07 Jan 2009 01:45:36 +0000 http://wordpress.org/?v=2.5.1 By: Barbara Keddy http://womenandfibromyalgia.com/2008/05/12/fibromyalgia-and-florence-nightingale/#comment-51 Barbara Keddy Thu, 15 May 2008 20:25:16 +0000 http://womenandfibromyalgia.com/2008/05/12/fibromyalgia-and-florence-nightingale/#comment-51 Thank you Tammy. I share your frustration and ironically I have just put up another blog about those elusive theories on cause, which I had finished before I read your comments. We are on the same wave length today! How wonderful you won your disability case. I discuss these disability problems in my book. Unfortunately I am not having a pain free day (do we ever?) but I have had worse. Best wishes. Thank you Tammy. I share your frustration and ironically I have just put up another blog about those elusive theories on cause, which I had finished before I read your comments. We are on the same wave length today!
How wonderful you won your disability case. I discuss these disability problems in my book.
Unfortunately I am not having a pain free day (do we ever?) but I have had worse.
Best wishes.

]]> By: Tammy Elaine McPherson http://womenandfibromyalgia.com/2008/05/12/fibromyalgia-and-florence-nightingale/#comment-50 Tammy Elaine McPherson Thu, 15 May 2008 18:51:18 +0000 http://womenandfibromyalgia.com/2008/05/12/fibromyalgia-and-florence-nightingale/#comment-50 I just wanted to say that your blog is an excellent resource for FM/CFS Sufferers! I have had FM for 15 years, wasn't properly diagnosed until 2003 and had to stop working in October, 2007. Somehow, I managed to win my disability in only 4 months and it begins at the end of May. It baffles me that they can claim that the "jury is still out" when my pain and suffering is very real! I've pretty much dedicated what is left of my life to helping others with the disease, maintaining a website, forum and blog. If I can help just one other person who is suffering from this debilitating disease then I will feel that I have accomplished something with the shell of a life that this disease has left me with! The medical profession as a whole, in my mind, are the ones confused...Is it the hypthalamus? Mitochondrial Dysfunction? Stress Overload? A past virus? Infection? Toxicity? They can't prove any of these so they just say "it's all in our minds"! As for effective treatments...they can't even agree that the disease is real, much less agree on or find a treatment or cure. I apologize, as I didn't intend to rant...it's just been one of those "lives" since I became ill with this disease. Again, I am afraid my reading the article that led me to your blog just set me off! LOL! I appreciate your work and will recommend your site to my visitors as I am trying to offer every useful or helpful resource to them that I can find. It seems that "information" is our greatest weopon against FM. I hope you are blessed with a pain-free day! Sincerely, Tammy Elaine McPherson The Ultimate Fibromyalgia Resource Center I just wanted to say that your blog is an excellent resource for FM/CFS Sufferers! I have had FM for 15 years, wasn’t properly diagnosed until 2003 and had to stop working in October, 2007. Somehow, I managed to win my disability in only 4 months and it begins at the end of May. It baffles me that they can claim that the “jury is still out” when my pain and suffering is very real! I’ve pretty much dedicated what is left of my life to helping others with the disease, maintaining a website, forum and blog. If I can help just one other person who is suffering from this debilitating disease then I will feel that I have accomplished something with the shell of a life that this disease has left me with!

The medical profession as a whole, in my mind, are the ones confused…Is it the hypthalamus? Mitochondrial Dysfunction? Stress Overload? A past virus? Infection? Toxicity? They can’t prove any of these so they just say “it’s all in our minds”! As for effective treatments…they can’t even agree that the disease is real, much less agree on or find a treatment or cure.

I apologize, as I didn’t intend to rant…it’s just been one of those “lives” since I became ill with this disease. Again, I am afraid my reading the article that led me to your blog just set me off! LOL! I appreciate your work and will recommend your site to my visitors as I am trying to offer every useful or helpful resource to them that I can find. It seems that “information” is our greatest weopon against FM.

I hope you are blessed with a pain-free day!
Sincerely,
Tammy Elaine McPherson
The Ultimate Fibromyalgia Resource Center

]]> By: Katrice http://womenandfibromyalgia.com/2008/05/12/fibromyalgia-and-florence-nightingale/#comment-46 Katrice Thu, 15 May 2008 06:48:14 +0000 http://womenandfibromyalgia.com/2008/05/12/fibromyalgia-and-florence-nightingale/#comment-46 I also discovered your blog from the Science Daily article. I, too, suffer with fibromyalgia, and am very grateful to have found your site. I look forward to learning and sharing, and will revisit often. Thanks! I also discovered your blog from the Science Daily article. I, too, suffer with fibromyalgia, and am very grateful to have found your site. I look forward to learning and sharing, and will revisit often.

Thanks!

]]> By: Barbara Keddy http://womenandfibromyalgia.com/2008/05/12/fibromyalgia-and-florence-nightingale/#comment-42 Barbara Keddy Wed, 14 May 2008 22:02:27 +0000 http://womenandfibromyalgia.com/2008/05/12/fibromyalgia-and-florence-nightingale/#comment-42 Will do so immediately and thank you! CFS and FMS are even closer than usual siblings...more like twins! Your site is a wonderful resource also! Hope you will read my book and comment on it! Will do so immediately and thank you! CFS and FMS are even closer than usual siblings…more like twins! Your site is a wonderful resource also! Hope you will read my book and comment on it!

]]> By: Fighting Fatigue/Sandy http://womenandfibromyalgia.com/2008/05/12/fibromyalgia-and-florence-nightingale/#comment-41 Fighting Fatigue/Sandy Wed, 14 May 2008 21:50:28 +0000 http://womenandfibromyalgia.com/2008/05/12/fibromyalgia-and-florence-nightingale/#comment-41 Hi Barbara! What a great resource you have here! I was wondering if you would like to exchange links with my CFS/FM website? I would love to add you to my list of CFS/FM Resources page. Hi Barbara! What a great resource you have here! I was wondering if you would like to exchange links with my CFS/FM website? I would love to add you to my list of CFS/FM Resources page.

]]> By: Barbara Keddy http://womenandfibromyalgia.com/2008/05/12/fibromyalgia-and-florence-nightingale/#comment-40 Barbara Keddy Wed, 14 May 2008 19:32:02 +0000 http://womenandfibromyalgia.com/2008/05/12/fibromyalgia-and-florence-nightingale/#comment-40 Thanks Robyn! Hope you will also enjoy the book! Thanks Robyn! Hope you will also enjoy the book!

]]> By: Robyn http://womenandfibromyalgia.com/2008/05/12/fibromyalgia-and-florence-nightingale/#comment-39 Robyn Wed, 14 May 2008 18:05:10 +0000 http://womenandfibromyalgia.com/2008/05/12/fibromyalgia-and-florence-nightingale/#comment-39 I just read about your blog on the Science Daily postings and as a fibromyalgia sufferer I look forward to reading more from you. Thank you for this blog. I just read about your blog on the Science Daily postings and as a fibromyalgia sufferer I look forward to reading more from you. Thank you for this blog.

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